Discharged tom., but CAN'T go HOME?

"We...take the good...we take the bad...we take it all...and there we have..."

---whistling, skipping, and living our lives one day at a time!  Here we go!

UPDATE:  Woke up in much less pain! Yeah!...Win~ 


Need to test the hip to see if I can sustain pain management orally in the event I go home.  Most likely will get discharged tomorrow Wed. April 25th, 2012...YEAH!


but wait....


THE HICCUP:  Got a call from Daddy this a.m.  Z was running a fever.  Barking cough that started in middle of the night.  Daddy calls Pediatrician and gets a 10am appt.  This means no school for Z, Daddy still working from home, Grammy coming up to me....ahhh!


VERDICT:  Z has Croup.  I'm ready to be released, but due to my compromise immune system meaning it's still a baby having been depleted, I can't go home or be in contact with my Bean for 3-4 days...


TORTURE-but we obv. don't have a choice...


(house needs to be disinfected...phew, at least we have that one covered...Thanks Gram Gram Grammy!  ;-p


Tomorrow upon discharge, I can't go home....I need to check into a hotel.  I can't see or be around Z for those 3 days because croup is a virus.  

Daddy gets an award for sustaining a paycheck; while, being MR. MOM...I so proud of the man I married.  It's when we are down that are love is tested.  OUR love is beyond the FUZZY stuff.  I definitely MARRIED UP....WE Really can do anything.  Love you sweetheart <3.

A normal person with a normal immune system can be around a person when the fever subsides.  For me, we can't risk me getting pneumonia.  Can treat Z with Steroids, DEF. CANNOT treat me with steroids to suppress an already suppressed immune system and then allow MELANOMA to go NUTS!


NOTE:  Jeff and I will be handing out flyers for crisis management.  Our seminars will begin:  TBA...Are you kidding me?  Once again, it is what it is and all we can do is ROLE and hope for the BEST...


"Obladee Obladah Life Goes On, OH...la la la la la la la"


On any other occassion, I would welcome a Dr. Mandated Stay at a hotel break...but all I really want is to kiss my baby....

Still happy to get discharged and thankful for everyday for a step in the right direction!

Soon, soon....very soon  PATIENCE is my lesson once again!  We've learned to expect Roller Coasters...We are better and stronger for what we have been through, but still pray for a break!

At least the more we go through, the next time a difficult situation arises, anxiety goes down and you realize how resilient we really are if we just believe.  

Where there is RAIN today, there is SUNSHINE tomorrow....I've proved that over and over and over again.

As I write this, I want to ask each of you to pray for my friend...


 Special Prayer Request for Shawnda Eddins who was my neighbor here at MDA.  She's having such a hard time keeping her red blood cells and platelets.  Every transfusion, nothing sticks due to complications.  I pray she can have a break and relief from this pain.  

I look at her and go:  "how does she do it?"  she looks at me and my story and says the same thing!  Right now, Shawnda needs some extra prayers.  Sending them her way and hopefully you will too.

Prayers for both of us:  AMEN!


Photo journalling of what RECOVERY LOOKS like:
Not an easy deal:


PUFFY FACE---THIS ISN'T EVEN MY FACE AT IT'S WORST...AT IT'S WORST I WAS COMATOSE...

NO EYELIDS, SWOLLEN EYES AND FLAKEY SKIN

LIKE THIS ALL OVER MY BODY:  THANK YOU EUCERINE!

THE PICTURE PRETTY MUCH TELLS IT ALL...

OK!  I KILLED NYDIA (MY APN) FOR TAKING THIS PHOTO


HAPPY BIRTHDAY JEN


THE DAY IL-2 WAS CALLED:  MY BIRTHDAY AND FROM HERE ON OUT WHAT I CALL MY CANCER FREE REBIRTH...PRAYING THIS IS TRUE.  HOW POETIC WOULD THAT BE? 


OK, FUNNY HAT...THANKS FOR THE LAUGHTER NYDIA!


THIS IS WHAT JEN LOOKS LIKE BALD AND WITH 30 LBS OF WATER GAINED IN 2 DAYS...I WASN'T GOING TO POST THIS BECAUSE IT'S BEYOND EMBARRASSING, BUT THEN I THOUGHT ABOUT IT AND YOU KNOW WHAT?  IT'S REAL..


YIKES!


THANK YOU LASIKS SPS?  IN ONE DAY, I PEED ALMOST 9 LITTERS...  


:-O


A MULTIPLE DAY EVENT AND MY HEAD AND BODY BEATLE JUICED BACK DOWN TO A NORMAL SIZE...


ON TREATMENT MY BLOOD PRESSURE WENT AS LOW AS 80/? TO AS HIGH AS 180/109...I DON'T REC. EITHER!

LET'S JUST SAY, I'VE FELT BETTER!

THAT ON MY HEAD IS A PILLOW CASE WITH AN ICE-PACK...
I HAD WARM BLANKETS AND A ICE-PACKS ON MY HIP AND HEAD!
RELIEF!

WELL, AS MUCH RELIEF AS ONE CAN GET...

NOW WE PRAY IT WORKS! AND WE PRAY HARD AND THIS POSITIVELY AND REMEMBER THAT THERE IS ALWAYS HOPE AROUND THE CORNER!